20 Best Ataxia Blogs & Websites

1. Ataxia UK Blog

Ataxia UK is the national charity for everyone affected by ataxia. We have been running for over forty years. Our mission is to support people affected by ataxia with research, information, welfare grants, campaigning and the opportunity to meet and help others in the same position.
ataxia.org.uk
Facebook Followers 8.4KTwitter Followers 4.6KInstagram Followers 2.7K Frequency 1 post / month Domain Authority 46 Get Email Contact

2. FARA - Scientific News

FARA's Mission is to marshal and focus the resources and relationships needed to cure FA by raising funds for research, promoting public awareness, and aligning scientists, patients, clinicians, government agencies, pharmaceutical companies and other organizations dedicated to curing FA and related diseases.
curefa.org
Facebook Followers 13.5KTwitter Followers 2.6K Frequency 4 posts / week Domain Authority 51 Get Email Contact

3. Friedreich's Ataxia News

At Friedreich's Ataxia News, we strive to bring to light the latest science and research pertaining to FA so that patients and their families can access and understand it. Our editorial staff scours clinical trials.gov, PubMed, and other sources to pick up on the most recent FA studies and present their findings in a way that patients can understand.
friedreichsataxianews.com
Facebook Followers 3.1K Frequency 6 posts / month Domain Authority 36 Get Email Contact

4. Nature | Spinocerebellar ataxia

Spinocerebellar ataxia refers to a group of genetic, progressive neurodegenerative disorders of the spine and the cerebellum that can affect balance, coordination and speech. Latest news and research from Nature.com on the topic of Spinocerebellar ataxia.
nature.com
Facebook Followers 506KTwitter Followers 2.6MInstagram Followers 845 Frequency 1 post / month Domain Authority 94 Get Email Contact

5. Action for A-T

Action for A-T is a charity that was set up by two parents following their daughter being diagnosed with a rare genetic disorder called Ataxia-Telangiectasia (A-T). Raising money for medical research for Ataxia Telangiectasia (A-T) - rare, neurodegenerative, genetic disease leading to disability and premature death.
actionforat.org
Facebook Followers 3.5KTwitter Followers 1.1KInstagram Followers 685 Frequency 1 post / week Domain Authority 37 Get Email Contact

6. Friedreich Ataxia Scientific News

Friedreich Ataxia and close related scientific news. Topics related to rare diseases.
friedreichscientificnews.blogspot.com
Facebook Followers 534Twitter Followers 74 Frequency 2 posts / week Since Dec Domain Authority 12 Get Email Contact

7. National Ataxia Foundation

Get Information on Ataxia, its symptoms, treatment, Ataxia research, and stories of people living with Ataxia. National Ataxia Foundation (NAF) is dedicated to improving the lives of persons affected by ataxia through support, education, and research.
ataxia.org/blog
Facebook Followers 10.4KTwitter Followers 2.9KInstagram Followers 1.7K Frequency 1 post / week Domain Authority 55 Get Email Contact

8. Ataxia & Me

Read real stories from real people with Ataxia. If you are affected by Ataxia, whether as a patient, family member, carer, relative, Healthcare professional, or friend, join us on this adventure of Ataxia awareness and communication. Ataxia and Me is a non-profit organisation helping to maximise the patient voice within the medical, health, and pharma community.
ataxia-and-me.org
Facebook Followers 1.3KTwitter Followers 3.9KInstagram Followers 1.3K Frequency 1 post / quarter Domain Authority 12 Get Email Contact

9. Retrospective Lily | My Disability Experience

My name is Lily. I'm 25 years old. I have Friedreich's Ataxia and use a wheelchair. This section of my blog is about my disability experience.
retrospectivelily.com
Facebook Followers 128 Frequency 1 post / quarter Domain Authority 13 Get Email Contact

10. The Life of Riley's

Our journey with Friedreichs Ataxia. Our son has recently been diagnosed with Friedreichs Ataxia and Cardiomyopathy. This is an honest blog about our journey as a family.
lifeofrileys.org
Facebook Followers 383 Frequency 1 post / quarter Domain Authority 3 Get Email Contact

11. Fara NZ Blog

Friedreich Ataxia Research Association New Zealand (FARA NZ) is a charitable organisation set up to improve the quality of life for people diagnosed with FA, by supporting them and their families and to assist the funding of scientific research to treat this rare neurological degenerative condition.
fara.org.nz/blog
Facebook Followers 266 Frequency 1 post / year Domain Authority 5 Get Email Contact

12. Team Kendall | Together We Will Cure Friedreich's Ataxia

Team Kendall is proud to support awareness for Friedreich's Ataxia, a rare genetic disease. Learn more about Friedreich's Ataxia and how you can help.
teamkendall.org
Facebook Followers 336Twitter Followers 23Instagram Followers 581 Frequency 21 posts / year Domain Authority 11 Get Email Contact

13. Ataxia 16-30 Blog

A community for young people living with ataxia. The national UK charity for people affected by ataxia. Fighting for a cure for all ataxias.
ataxia16to30.org.uk
Facebook Followers 8.4KTwitter Followers 54 Domain Authority 11 Get Email Contact

14. National Ataxia Foundation Blog

Connecting Ataxia families, researchers, clinicians and the community. NAF is a membership supported nonprofit organization established in 1957 to help persons with Ataxia and their families. The Foundation's primary purpose is to support Ataxia research, provide vital programs and services for Ataxia families, and help in the search for a cure.
ataxia.org/blog
Facebook Followers 10.4KTwitter Followers 2.9K Domain Authority 55 Get Email Contact

15. Friedreich Ataxia Network | Queensland's FA support network

We are FAN, a support- and information-sharing network for anyone impacted by Friedreich Ataxia (FA) FAers, family, carers and friends.
fan.asn.au
Twitter Followers 382 Frequency 1 post / year Domain Authority 18 Get Email Contact

16. Hope For Ataxia Blog

Our mission at Hope For Ataxia is to raise Ataxia awareness globally. Our blog features stories of people living with Ataxia, along with Ataxia news and recipes for people with Ataxia to cook.
hopeforataxia.org
Facebook Followers 1.7KTwitter Followers 62 Domain Authority 12 Get Email Contact

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