20 Best Ataxia Blogs & Websites in 2024

1. Ataxia UK

The Ataxia UK blog offers insights and support for individuals affected by ataxia, a rare neurological disorder. The blog is managed by Ataxia UK, the leading national charity dedicated to ataxia research and patient support. The organization, spearheaded by a team of experts and advocates, aims to find a cure while improving care and raising awareness. The blog covers research updates, personal stories, and resources, reflecting Ataxia UK's commitment to empowering those affected by the condition.
Blog ataxia.org.uk
Facebook Followers 8.4KTwitter Followers 3.5KInstagram Followers 2.8K Frequency 1 post / month Domain Authority 46 Get Email Contact Get Influential Bloggers ContactsGet access to 250k active Bloggers in 1500 niche categories.Get targeted media contact list in your niche at your fingertips so you can focus on running your campaign.Email us the type of bloggers you want to reach out for your marketing campaign at anuj@feedspot.com Copy email. We'll share blogger's data in an Excel or CSV format.Email us

2. Friedreich's Ataxia Research Alliance News

The blog on Connie Hurst's website features articles on mental health, neurofeedback, and holistic approaches to therapy. Connie Hurst, M.A., LMFT, is a licensed marriage and family therapist specializing in neurofeedback and holistic treatments for conditions like anxiety, ADHD, and trauma. Her practice is based in Huntington Beach, California, and she is dedicated to integrating advanced therapeutic techniques to promote mental well-being. The blog covers a range of topics, including neurofeedback benefits and holistic treatment options for mental health challenges.
Blog curefa.org
Facebook Followers 13.5KTwitter Followers 2.1K Frequency 4 posts / week Domain Authority 51 Get Email Contact

3. Friedreich's Ataxia News

Friedreich's Ataxia News is a digital platform dedicated to providing the latest news, research updates, and personal stories related to Friedreich's ataxia (FA). Authored by a team of science writers and editors, many with PhDs in life sciences, the blog covers various aspects of FA, including treatment options, patient experiences, and expert interviews. The editorial team, led by Senior Vice President Kellie Benn and Director of Science Content Patricia Silva, ensures high-quality, accurate, and engaging content aimed at educating and supporting the FA community.
Blog friedreichsataxianews.com
Facebook Followers 3.1K Frequency 6 posts / month Domain Authority 36 Get Email Contact

4. Nature » Spinocerebellar Ataxia

The Nature Portfolio blog on spinocerebellar ataxia offers comprehensive insights into the latest research and developments regarding this group of genetic disorders affecting the spine and cerebellum. As part of the esteemed Nature Portfolio, the blog is curated by an expert editorial team, including Editor-in-Chief Magdalena Skipper, ensuring high-quality, peer-reviewed content. The blog highlights groundbreaking studies, clinical trials, and advancements in understanding and treating spinocerebellar ataxia, making it an invaluable resource for researchers and healthcare professionals.
Blog nature.com
Facebook Followers 506KTwitter Followers 2.2MInstagram Followers 845 Frequency 1 post / month Domain Authority 94 Get Email Contact

5. Action for A-T

Action for A-T is a charity that was set up by two parents following their daughter being diagnosed with a rare genetic disorder called Ataxia-Telangiectasia (A-T). Raising money for medical research for Ataxia Telangiectasia (A-T) - rare, neurodegenerative, genetic disease leading to disability and premature death.
Blog actionforat.org
Facebook Followers 3.5KTwitter Followers 993Instagram Followers 706 Frequency 1 post / week Domain Authority 37 Get Email Contact

6. Friedreich Ataxia Scientific News

The Friedreich Ataxia Scientific News blog, authored by Juan Carlos Baiges, provides updates on the latest scientific research related to Friedreich's Ataxia and other rare diseases. Juan Carlos, with a background in pharmacy and computer science, shares detailed analyses and summaries of new studies, case reports, and advancements in treatment approaches. The blog aims to inform and connect the scientific community and those affected by these conditions.
Blog friedreichscientificnews.blogspot.com
Facebook Followers 546Twitter Followers 71 Frequency 2 posts / week Since Dec Domain Authority 12 Get Email Contact

7. FARA Blog

The Friedreich Ataxia Research Association (fara) is a not for profit organisation that supports research into treatments and a cure for Friedreich Ataxia. fara does not receive State or Commonwealth Government support and relies largely on the family and friends of Friedreich Ataxia patients and generous businesses within Australia and New Zealand to fund its research programs.
Blog fara.org.au/news
Facebook Followers 1.4KInstagram Followers 1.4K Frequency 1 post / quarter Domain Authority 30 Get Email Contact

8. National Ataxia Foundation Blog

The National Ataxia Foundation (NAF) blog provides a wealth of information on ataxia, a rare neurological disease. Authored by experts from NAF, including CEO Andrew Rosen and VP of Research Dr. Lauren Moore, the blog offers insights into research developments, patient stories, and support resources. The NAF, established in 1957, is dedicated to accelerating treatments and improving the lives of those affected by ataxia through research funding and educational programs.
Blog ataxia.org/blog
Facebook Followers 11.5KTwitter Followers 2.5KInstagram Followers 2K Frequency 1 post / week Domain Authority 55 Get Email Contact

9. Ataxia & Me

Read real stories from real people with Ataxia. If you are affected by Ataxia, whether as a patient, family member, carer, relative, Healthcare professional, or friend, join us on this adventure of Ataxia awareness and communication. Ataxia and Me is a non-profit organisation helping to maximise the patient voice within the medical, health, and pharma community.
Blog ataxia-and-me.org
Facebook Followers 1.3KTwitter Followers 3.6KInstagram Followers 1.3K Frequency 1 post / quarter Domain Authority 12 Get Email Contact

10. Retrospective Lily » My Disability Experience

Retrospective Lily is a blog authored by Lily Pierce, who shares her experiences living with Friedreich's Ataxia, a rare genetic condition. Lily, a 30-year-old with an English degree and a passion for her faith as an active member of the United Methodist Church, uses her platform to inspire others through her positivity and resilience. An avid plant enthusiast with around 100 houseplants, Lily aims to be a beacon of light and hope for her readers. The blog features personal stories, reflections, and insights into living with a disability.
Blog retrospectivelily.com
Facebook Followers 128 Frequency 1 post / quarter Domain Authority 13 Get Email Contact

11. The Life of Riley's

The blog The Life of Riley's documents the family's journey with Friedreich's Ataxia, a rare genetic disorder. Authored by the Riley family, the blog offers a candid look into their daily lives, challenges, and triumphs. The writing is engaging and often humorous, providing a mix of personal stories and insights into managing life with a chronic condition. The blog serves as a source of support and community for others facing similar challenges.
Blog lifeofrileys.org
Facebook Followers 484 Frequency 1 post / quarter Domain Authority 3 Get Email Contact

12. Fara NZ Blog

The Friedreich Ataxia Research Association (FARA) NZ blog shares updates on research, events, and personal stories related to Friedreich Ataxia (FA). The blog is curated by a dedicated team of advocates and researchers, including Dianne Boon, the chairperson of FARA NZ. The organization focuses on improving the quality of life for individuals with FA through advocacy, support, and funding research. The blog covers topics such as new research opportunities, patient forums, and community events.
Blog fara.org.nz/blog
Facebook Followers 314 Frequency 1 post / year Domain Authority 5 Get Email Contact

13. Team Kendall Blog

The Team Kendall blog provides personal insights and stories related to living with Friedreich's Ataxia (FA), authored by Kendall, a dedicated advocate and freelance columnist for Friedreich's Ataxia News. The blog shares her experiences, challenges, and triumphs in managing FA, aiming to raise awareness and offer support to others affected by the condition. Kendall's candid reflections and informative posts help build a supportive community around FA.
Blog teamkendall.org
Facebook Followers 336Twitter Followers 27Instagram Followers 581 Frequency 21 posts / year Domain Authority 11 Get Email Contact

14. National Ataxia Foundation Blog

The National Ataxia Foundation (NAF) blog provides vital information and support for individuals affected by ataxia, a rare neurological disorder. The blog is curated by NAF, an organization founded in 1957 with a mission to accelerate the development of treatments and a cure for ataxia. Under the leadership of CEO Andrew Rosen and a dedicated team, the blog offers research updates, personal stories, and resources to enhance the lives of those living with ataxia. Contributions from experts like Dr. Lauren Moore, Chief Scientific Officer, enrich the content with professional insights.
Blog ataxia.org/blog
Facebook Followers 10.4KTwitter Followers 2.1K Domain Authority 55 Get Email Contact

15. Friedreich Ataxia Network

The Friedreich Ataxia Network (FAN) blog offers support, information, and community stories for individuals affected by Friedreich Ataxia (FA). Authored by members of the FA community and managed by a dedicated team, the blog addresses living with FA, managing symptoms, and the latest research developments. Contributors include Jamie-Lee (FAer) and Karen (NDIS tips). FAN, based in Queensland, focuses on enhancing the quality of life for FA patients through education, advocacy, and social connections.
Blog fan.asn.au
Twitter Followers 382 Frequency 1 post / year Domain Authority 18 Get Email Contact

16. Hope For Ataxia Blog

The Hope for Ataxia blog, led by a dedicated team, raises awareness about ataxia and provides support to those affected by the condition. The blog features personal stories, medical insights, and community profiles, aiming to foster a sense of connection and hope among readers. It highlights experiences from individuals living with different forms of ataxia and discusses advancements in treatment and care. Hope for Ataxia's mission is to educate the public, support patients and their families, and promote research.
Blog hopeforataxia.org
Facebook Followers 2.1KTwitter Followers 50 Domain Authority 12 Get Email Contact